Dancing with Lewy: A Father – Daughter Dance, before and after Lewy Body Dementia Came to Live with Us

Within Dancing with Lewy, readers meet two individuals, Lee and Nancy. Lee was born into a large farming family just before the Great Depression. He was a World War II Veteran, self-made businessman, artist, poet, and a man who would give a stranger his last nickel. Lee’s third daughter, Nancy, is practical, organized, pragmatic, writer, and equaling her father in determination. Nancy was determined to take the helm when Lee’s mind began “dancing” with Lewy body dementia even though he resolved to remain independent while his mind slipped away. Within Dancing with Lewy, readers also meet God as the one who carried the family through this storm and offered grace to the weariness of the family.

This memoir is written through Nancy’s eyes. Woven throughout Dancing with Lewy is original poetry written by Lee which gives readers a glimpse into his outlook to life. The memoir contains two parts. Part I tells the story of Lee’s young life, Nancy’s growing up years with her dad, and the toll dementia took on their family. During these pages, readers feel the pain of grief when Nancy’s mom died of cancer and her dad became even more confused. Part II of Dancing with Lewy shares lessons learned and provides hope for caregivers tending to their loved one(s) who have a debilitating illness.